Beating Tourette

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TIC Talk on Facebook

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TIC Talk is a group created initially for parents of kids with Tourettes. However, adults with TS are welcome to join us. The group is listed as closed to respectfully keep private things shared amongst the group. There are over 400 members so it is a good forum.

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Written by Admin

January 31, 2012 at 9:56 pm

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8th birthday

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July 2, 2011 at 2:14 pm

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Medicine

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Clearly, if disease is manmade, it can also be man-prevented. It should be the function of medicine to help people die young as late in life as possible.
Dr. Ernst Wunder, President, American Health Foundation (1975)

Written by Admin

June 11, 2011 at 8:36 am

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My teacher of the year

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Kendrick’s teacher is the best! She has been so helpful and caring for our son and he loves her very much. She goes out of her way to find things that will  help our son: she reminds him to breathe when his tics get bad, she lets him stand up in front of his desk when he needs to, she lets him move around during carpet time, etc. Amazingly, two weeks before school started she saw a documentary on Tourette and was thus able to immediately understand what we were talking about on the first day of school. This in itself was such a blessing, but her care and attention have been more than we could hope for.
My son is in a French immersion program in second grade. There are more than 25 students in the class and she gets help only from parent volunteers, from what I understand. That in itself is a makes her days full and challenging. And yet she has been there for us and Kendrick.
Towars the middle of the year she suggested we have Kendrick considered for special accommodations due to his “disability”.  For me, this was a very difficult request. This was going to make me admit there was a problem and put that admission on file. This was going to “officialize” the syndrome. Through her patience and preparation though, the process was seamless. She prepared everything and made the best recommendation. Today I’m very grateful for her suggestion and I know it was in my son’s best interest. Now if he has tics during a test and they hinder his ability to write he has the possibility of taking a break and getting more time. Also if his tics disturb other children then he can take the test seperately.
We are so greatful for her help and love.

Written by Admin

May 28, 2011 at 6:32 pm

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James Durbin

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American Idol Top 3 Finalist James Durbin  Rocks the Lives of Those  Living with Tourette Syndrome.

Written by Admin

May 7, 2011 at 8:15 pm

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Our son was diagnosed with Tourette

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A year ago we finally were told what was wrong with our little man. When thinking back I am very grateful that we figured this out so quickly. But, back then, it seemed like forever. I remember times of total panic and despair. My heart goes out to all those parents out there that have a child with a health problem.

So, our son has Tourette. We have decided to fight this, and we will do everything possible to help our son. Because of the hours of research, hours with Doctors, and hours dealing with this Syndrome, we thought it could be helpful for others if we shared our findings, our experience, and now our knowledge.

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May 7, 2011 at 2:08 pm

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What is Tourette?

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Gilles de la Tourette syndrome is a disorder of the nervous system that causes a person to make repeated and uncontrolled (involuntary) rapid movements and sounds (vocalizations) called tics. The disorder is commonly called Tourette Syndrome (TS).

The early symptoms of TS are almost always noticed first in childhood, with the average onset between the ages of 7 and 10 years. TS occurs in people from all ethnic groups;but males are affected about three to four times more often than females. It is estimated that 200,000 Americans have the most severe form of TS, and as many as one in 100 exhibit milder and less complex symptoms such as chronic motor or vocal tics or transient tics of childhood. Although TS can be a chronic condition with symptoms lasting a lifetime, most people with the condition experience their worst symptoms in their early teens, with improvement occurring in the late teens and continuing into adulthood.

The National Institute of Neurological Disorders and Stroke has a good fact sheet that I recommend.

Written by Admin

May 7, 2011 at 12:05 pm

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